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World Report View

Today 19th june marks World Sickle Cell Day.

by Arushi Madan | 19-06-2013 20:37 recommendations 0

Today marks World Sickle Cell Day.

And while celebrities such as TLC front woman T-Boz, football player Tiki Barbar, rapper Prodigy from Mobb Deep, and actor Larenz Tate all suffer from sickle cell, not too many people are sure what exactly the disease is.

Sickle cell is an inherited disease in which the red blood cells in your body are shaped in sickles with jagged edges as opposed to smooth ovals or discs. Red blood cells carry oxygen throughout the body.

According to Pub Health Med, when the sickle-cell shaped cells are weak, they deliver less oxygen to the body?s tissues. These cells also can get stuck in the tiny blood vessels, breaking into little pieces and decreasing the amount of oxygen getting delivered.

Symptoms usually appear in babies between 4 months and 1 year old. People with sickle cell may experience extremely painful episodes, called crises, which can last from hours to days. Some people with sickle cell have these episodes every few years or every year. Sometimes these episodes can be so severe they force someone to be hospitalized.

Other symptoms include the following:
Fatigue
—Paleness
—Rapid heart rate
—Shortness of breath
—Yellowing of the eyes and skin (jaundice)
—Stroke
—Death
—Swelling of hands and feet
—Bacterial infections
—Leg ulcers
—Eye Damage
—Lung and heart injury

It is estimated that between 90 to 100,000 Americans are living with sickle-cell anemia, many of them African-American and people of color. One out of every 500 Black babies is born with sickle cell one in 12 African-Americans are carriers of the sickle-cell anemia gene.


According to the National Heart Lung and Blood Institute, there is treatment for sickle cell that aims at relieving pain and preventing infections, organ damage and strokes. Some people may receive blood and marrow stem cell transplants in hopes for a cure, but this only works for a few people who suffer from sickle cell. As of now, for most people living with sickle cell, there is no cure.

Sickle Cell Disease (SCD) is the most frequent genetic disease worldwide. It is present on four continents: in sub-Saharan Africa and in the Maghrib, in Asia (Middle-East, Arabic peninsula, India), in the Americas, on the North (USA), centre (Guatemala, Caribbean islands), and on the South (Brazil,Surinam, Guiana), in Southern Europe (Southern Italy and Sicily, Greece, Turkey). It is estimated that 500.000 are born every year with this severe and invalidating condition and that 50% of them will die before the age of 5 years. Trans-continental, SCD is also trans-ethnic and affects black populations from African origin and Arabic, Indian and Caucasian populations from Southern Europe.

Through advocacy of the Sickle Cell Disease International Organisation (SCDIO), the support of the Republic of Congo and the Republic of Senegal, and the commitment in the scientific world, the African Union (in 2005), the UNESCO (2005), WHO (2006), and the United Nations (2008) recognized sickle cell disease as a public health priority. The 19 of June, has been chosen to celebrate every year the World Sickle Cell Day in order to raise awareness of the disease in the world.

 World Sickle Cell Awareness Day provides an opportunity to increase understanding of SCD and how the disease affects individuals and families worldwide.

Facts about SCD:

  • SCD is an inherited group of red blood cell disorders.
  • Among people with SCD, "sickle" or abnormally shaped red blood cells get stuck in small blood vessels and block the flow of blood and oxygen to organs in the body. These blockages can cause repeated episodes of severe pain, organ damage, and serious infections, or even stroke.
  • It is estimated that SCD affects 90,000 to 100,000 people in the United States, mainly Blacks or African Americans. The disease occurs among about 1 of every 500 Black or African-American births and among about 1 out of every 36,000 Hispanic-American births.
  • SCD affects millions of people throughout the world and is particularly common among those whose ancestors come from sub-Saharan Africa regions in the Western Hemisphere (South America, the Caribbean, and Central America) Saudi Arabia India and Mediterranean countries such as Turkey.

  

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  • Dormant user Arushi Madan
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9 Comments

  • Asmita Gaire says :
    Hello arushi
    I hope you are doing well

    Thank you so much for this wonderful report.
    Keep writing!
    Regards
    Asmita Gaire
    Posted 16-05-2020 11:40

  • says :
    thanks for the report
    Posted 25-06-2013 21:46

  • says :
    good report
    Posted 25-06-2013 21:44

  • says :
    Thanks for the information
    Posted 24-06-2013 20:32

Aaditya Singh

  • Aaditya Singh says :
    Thanks for the info.
    Posted 24-06-2013 05:31

  • Arushi Madan says :
    Thanks Rohan and Raunak
    Posted 23-06-2013 04:18

  • says :
    Good report,
    Posted 22-06-2013 21:16

  • Rohan Kapur says :
    Good Pics, Arushi.
    Posted 22-06-2013 20:42

  • says :
    Thank you for sharing this information!
    Posted 20-06-2013 01:28

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